{"id":1194,"date":"2016-05-22T04:24:49","date_gmt":"2016-05-22T04:24:49","guid":{"rendered":"https:\/\/www.primarycaregenetics.org\/?page_id=1194"},"modified":"2019-10-04T14:43:54","modified_gmt":"2019-10-04T14:43:54","slug":"o-nas","status":"publish","type":"page","link":"https:\/\/www.primarycaregenetics.org\/?page_id=1194&lang=cz","title":{"rendered":"O n\u00e1s"},"content":{"rendered":"

Partne\u0159i zapojen\u00ed do tohoto projektu aktu\u00e1ln\u011b p\u016fsob\u00ed v \u0161esti evropsk\u00fdch zem\u00edch. Jsou to osobnosti se zku\u0161enostmi z prim\u00e1rn\u00ed p\u00e9\u010de, genetiky a vzd\u011bl\u00e1v\u00e1n\u00ed dosp\u011bl\u00fdch i z organizac\u00ed na podporu pacient\u016f. Autorkou my\u0161lenky projektu je profesorka Heather Skirton, kter\u00e1 m\u00e1 zku\u0161enosti z o\u0161et\u0159ovatelstv\u00ed, porodnictv\u00ed a genetick\u00e9ho poradenstv\u00ed. Projekt navrhla spolu s doktorkou Isou Houwink, praktickou l\u00e9ka\u0159kou z Nizozemska.<\/p>\n

\n
<\/div>\n
\n

Heather Skirton z Univerzity v Plymouthu ve Spojen\u00e9m kr\u00e1lovstv\u00ed projekt \u0159\u00edd\u00ed. Heather m\u00e1 zku\u0161enosti z oblasti zdravotn\u00ed p\u00e9\u010de a je registrovanou zdravotn\u00ed sestrou, registrovanou genetickou poradkyn\u00ed a kvalifikovanou porodn\u00ed asistentkou. P\u0159es 20 let p\u0159edn\u00e1\u0161\u00ed o genetice zdravotnick\u00e9 ve\u0159ejnosti nejen ve Spojen\u00e9m kr\u00e1lovstv\u00ed, ale po cel\u00e9 Evrop\u011b. V sou\u010dasnosti zast\u00e1v\u00e1 funkci p\u0159edsedkyn\u011b Evropsk\u00e9 rady pro l\u00e9ka\u0159skou genetiku (European Board of Medical Genetics).<\/p>\n<\/div>\n

<\/div>\n

\"h89GSH-Z\"<\/p>\n

<\/div>\n
<\/div>\n<\/div>\n
\n
<\/div>\n
\n

Dr Leigh Jackson je v\u00fdzkumn\u00edk se zku\u0161enostmi z laboratorn\u00ed i klinick\u00e9 genetiky. Je kvalifikovan\u00fdm vysoko\u0161kolsk\u00fdm pedagogem, kter\u00fd se specializuje na p\u0159ed\u00e1v\u00e1n\u00ed v\u011bdeck\u00fdch poznatk\u016f nev\u011bdeck\u00e9 ve\u0159ejnosti.<\/p>\n<\/div>\n

<\/div>\n

\"image1\"<\/p>\n

<\/div>\n
<\/div>\n<\/div>\n
\n
<\/div>\n
\n

Peter Lunt do projektu p\u0159in\u00e1\u0161\u00ed sv\u00e9 zku\u0161enosti s tvorbou vzd\u011bl\u00e1vac\u00edch materi\u00e1l\u016f pro pracovn\u00edky prim\u00e1rn\u00ed p\u00e9\u010de, kter\u00e9 z\u00edskal jako \u010dlen organizac\u00ed UK NHS National Genetics a Genomics Education Centre. P\u0159es dvacet p\u016fsob\u00ed jako klinick\u00fd genetick\u00fd poradce pro ot\u00e1zky managementu pacient\u016f s genetick\u00fdmi chorobami a jako sty\u010dn\u00fd bod pro pracovn\u00edky prim\u00e1rn\u00ed p\u00e9\u010de a p\u0159edn\u00e1\u0161\u00ed genetiku student\u016fm medic\u00edny a pracovn\u00edk\u016fm ve zdravotnictv\u00ed.<\/p>\n<\/div>\n

<\/div>\n

\"Peter<\/p>\n

<\/div>\n
<\/div>\n<\/div>\n
\n
<\/div>\n
\n

Nizozemsko<\/strong><\/p>\n

Isa Houwink je aktivn\u00ed praktickou l\u00e9ka\u0159kou, kter\u00e1 se ve sv\u00e9 diserta\u010dn\u00ed pr\u00e1ci zab\u00fdvala modern\u00edmi zp\u016fsoby vzd\u011bl\u00e1v\u00e1n\u00ed praktick\u00fdch l\u00e9ka\u0159\u016f v oblasti genetiky a navrhla a p\u0159ipravila vzd\u011bl\u00e1vac\u00ed programy zalo\u017een\u00e9 na skute\u010dn\u00fdch i simulovan\u00fdch p\u0159\u00edpadech. Do projektu p\u0159in\u00e1\u0161\u00ed sv\u00e9 zku\u0161enosti se vzd\u011bl\u00e1v\u00e1n\u00edm praktick\u00fdch l\u00e9ka\u0159\u016f a hlubok\u00e9 znalosti z praxe prim\u00e1rn\u00ed p\u00e9\u010de.<\/p>\n

Martina Cornel je profesorkou komunitn\u00ed genetiky a genomiky ve\u0159ejn\u00e9ho zdrav\u00ed na VU University Medical Centre v Amsterodamu. Pod\u00edl\u00ed se na v\u00fduce student\u016f medic\u00edny a na projektech v oblasti zdravotnick\u00fdch v\u011bd a postgradu\u00e1ln\u00edho vzd\u011bl\u00e1v\u00e1n\u00ed.\"Unknown\"<\/p>\n<\/div>\n

<\/div>\n
\n

\"IMG_3684\"<\/p>\n<\/div>\n

<\/div>\n
<\/div>\n<\/div>\n
\n
\n
<\/div>\n
\n
\n

\u010cesk\u00e1 republika<\/strong><\/p>\n

Radka Kreml\u00edkov\u00e1 Pourov\u00e1 je klinickou geneti\u010dkou s\u00a0klinick\u00fdmi i laboratorn\u00edmi zku\u0161enostmi. V\u011bnuje se pr\u00e1ci s pacienty, v\u00fduce medik\u016f i v\u011bdeck\u00e9 pr\u00e1ci.<\/p>\n

\n

\"\"<\/p>\n

V\u00e1clava Curtisov\u00e1 je pediatri\u010dka a praktikuj\u00edc\u00ed klinick\u00e1 geneti\u010dka se studijn\u00edmi a pracovn\u00edmi zku\u0161enostmi z Anglie a \u010cesk\u00e9 republiky. Pod\u00edl\u00ed se na v\u00fduce student\u016f medic\u00edny a pracovn\u00edk\u016f ve zdravotnictv\u00ed.<\/p>\n

\n<\/div>\n
\n

\"\"<\/p>\n

Profesor Milan Macek m\u00e1 zku\u0161enosti z klinick\u00e9 i laboratorn\u00ed genetiky. Je prezidentem Spole\u010dnosti l\u00e9ka\u0159sk\u00e9 genetiky \u010cR a n\u00e1rodn\u00edm koordin\u00e1torem projektu Orphanet.<\/p>\n

\"\"<\/p>\n<\/div>\n

<\/div>\n
<\/div>\n<\/div>\n
<\/div>\n<\/div>\n
\n
<\/div>\n
\n

Island<\/strong><\/p>\n

Vigdis Stefansdottir pracuje jako genetick\u00e1 poradkyn\u011b v islandsk\u00e9 N\u00e1rodn\u00ed univerzitn\u00ed nemocnici Landspitali. P\u016fsob\u00ed na poli dal\u0161\u00edho profesn\u00edho vzd\u011bl\u00e1v\u00e1n\u00ed na Islandu a m\u00e1 rozs\u00e1hl\u00e9 zku\u0161enosti se srozumiteln\u00fdm p\u0159ed\u00e1v\u00e1n\u00edm technick\u00fdch informac\u00ed d\u00edky sv\u00e9 novin\u00e1\u0159sk\u00e9 praxi. M\u00e1 tak\u00e9 zku\u0161enosti s tvorbou webov\u00fdch str\u00e1nek a s managementem.<\/p>\n<\/div>\n

<\/div>\n

\"IMG_2266\"<\/p>\n

<\/div>\n
<\/div>\n<\/div>\n
\n
<\/div>\n
\n

It\u00e1lie<\/strong><\/p>\n

Daniela Turchetti je klinickou geneti\u010dkou s odborn\u00fdmi znalostmi v oblasti n\u00e1dorov\u00e9 genetiky. P\u0159edn\u00e1\u0161ela na kurzech po\u0159\u00e1dan\u00fdch Evropskou \u0161kolou l\u00e9ka\u0159sk\u00e9 genetiky (European School of Genetic Medicine), ve kter\u00fdch se v\u011bnovala t\u00e9mat\u016fm, jako jsou d\u011bdi\u010dn\u00e9 p\u0159edpoklady rozvoje rakoviny a genetick\u00e9 poradenstv\u00ed. Daniela sehr\u00e1la v\u00fdznamnou roli p\u0159i definov\u00e1n\u00ed postup\u016f p\u0159i identifikaci a managementu pacient\u016f s d\u011bdi\u010dn\u00fdm rizikem rakoviny na m\u011bstsk\u00e9 a krajsk\u00e9 \u00farovni. Pod\u00edl\u00ed se na vzd\u011bl\u00e1v\u00e1n\u00ed praktick\u00fdch l\u00e9ka\u0159\u016f a dal\u0161\u00edch zdravotnick\u00fdch pracovn\u00edk\u016f.<\/p>\n<\/div>\n

<\/div>\n

\"2015-09-01<\/p>\n

<\/div>\n
<\/div>\n<\/div>\n
\n
<\/div>\n
\n

Portugalsko<\/strong><\/p>\n

Milena Paneque je genetickou poradkyn\u00ed a psycholo\u017ekou. Vystudovala na Kub\u011b, ale ji\u017e 10 let p\u016fsob\u00ed v Portugalsku, kde se v\u011bnuje p\u0159\u00edprav\u011b vzd\u011bl\u00e1vac\u00edch program\u016f v oblasti genetick\u00e9ho poradenstv\u00ed, klinick\u00e9 praxi v oblasti genetick\u00e9 p\u00e9\u010de a v\u00fdzkumu kvality genetick\u00e9 p\u00e9\u010de. M\u00e1 zku\u0161enosti se vzd\u011bl\u00e1v\u00e1n\u00edm zdravotnick\u00fdch pracovn\u00edk\u016f v oblasti genetiky ve vysoko\u0161kolsk\u00e9m sektoru a je garantkou a vyu\u010duj\u00edc\u00ed magistersk\u00e9ho programu genetick\u00e9ho poradenstv\u00ed v Portugalsku.\u00a0 Pod\u00edlela se na definov\u00e1n\u00ed kl\u00ed\u010dov\u00fdch kompetenc\u00ed a c\u00edl\u016f evropsk\u00fdch program\u016f vzd\u011bl\u00e1v\u00e1n\u00ed zdravotnick\u00fdch pracovn\u00edk\u016f v oblasti genetiky a v sou\u010dasnosti zast\u00e1v\u00e1 pozici spolup\u0159edsedkyn\u011b Divize genetick\u00fdch poradc\u016f a sester p\u0159i Evropsk\u00e9 rad\u011b pro l\u00e9ka\u0159skou genetiku. Je pr\u016fkopnic\u00ed vzd\u011bl\u00e1v\u00e1n\u00ed v oblasti genetiky a genetick\u00e9ho poradenstv\u00ed v Portugalsku.<\/p>\n<\/div>\n

<\/div>\n

\"Milena\"<\/p>\n

<\/div>\n
<\/div>\n<\/div>\n
<\/div>\n","protected":false},"excerpt":{"rendered":"

Partne\u0159i zapojen\u00ed do tohoto projektu aktu\u00e1ln\u011b p\u016fsob\u00ed v \u0161esti evropsk\u00fdch zem\u00edch. Jsou to osobnosti se zku\u0161enostmi z prim\u00e1rn\u00ed p\u00e9\u010de, genetiky a vzd\u011bl\u00e1v\u00e1n\u00ed dosp\u011bl\u00fdch i z organizac\u00ed na podporu pacient\u016f. Autorkou my\u0161lenky projektu je profesorka Heather Skirton, kter\u00e1 m\u00e1 zku\u0161enosti z o\u0161et\u0159ovatelstv\u00ed, porodnictv\u00ed a genetick\u00e9ho poradenstv\u00ed. Projekt navrhla spolu s doktorkou Isou Houwink, praktickou l\u00e9ka\u0159kou z Nizozemska. Heather Skirton z Univerzity v Plymouthu ve Spojen\u00e9m kr\u00e1lovstv\u00ed projekt \u0159\u00edd\u00ed. Heather m\u00e1 zku\u0161enosti z oblasti zdravotn\u00ed p\u00e9\u010de a je registrovanou zdravotn\u00ed sestrou, registrovanou […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"template-fullwidth.php","meta":{"ngg_post_thumbnail":0},"_links":{"self":[{"href":"https:\/\/www.primarycaregenetics.org\/index.php?rest_route=\/wp\/v2\/pages\/1194"}],"collection":[{"href":"https:\/\/www.primarycaregenetics.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.primarycaregenetics.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.primarycaregenetics.org\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.primarycaregenetics.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1194"}],"version-history":[{"count":10,"href":"https:\/\/www.primarycaregenetics.org\/index.php?rest_route=\/wp\/v2\/pages\/1194\/revisions"}],"predecessor-version":[{"id":2912,"href":"https:\/\/www.primarycaregenetics.org\/index.php?rest_route=\/wp\/v2\/pages\/1194\/revisions\/2912"}],"wp:attachment":[{"href":"https:\/\/www.primarycaregenetics.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1194"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}